Public Health and Health Services Research Group
Worldwide, stroke is a leading cause of death and disability. Our group conducts various projects related to improving the clinical management and outcomes of stroke. Research on the quality of stroke care in public hospitals continues to be a major objective including our operational management of the Australian Stroke Clinical Registry (AuSCR) since 2012. We undertake research using co-design methods, and evaluate systems to improve the delivery of evidence-based care and achieve better health outcomes after stroke.
Research interests
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About our research
By collaborating with hospitals, and by following up with patients, our group collects and reports information about the hospital care and the current health status of those that experience stroke. This information can be used to track changes over time, identify areas that may warrant further attention through hospital-driven quality improvement initiatives, policy development, or future research. We have also led innovations in developing acute stroke telemedicine services now funded by government, and other projects that support people living in the community with stroke.
Our data linkage projects have been at the forefront of national efforts to improve the reuse and augmentation of data from clinical quality registries. The AuSCR program also enables access to over 36,000 survivors of stroke who have agreed to be contacted for new research projects. Our registry based clinical trials enable real-world testing of novel solutions to improve the health system.
Our team convenes the National Stroke Quality Workshop each year and hosts a Community of Practice for Telehealth for Stroke Rehabilitation and Recovery (with over 480 members). These platforms enable exchange of ideas and innovations among academics, policymakers and various clinical disciplines to ensure co-designed solutions and to drive forward knowledge translation to improve stroke care.
Research team
Research team head
Group Head
Research and technical staff
- Julie Morrison
- Kate Paice
- Jot Ghuliani
- Adele Gibbs
- Elizabeth Gregory
- Helen Carter
- Mya Thandar
- Nancy Pompeani
- Violet Marion
- Kathleen Bagot
- Selina Chen
- Abigail Dewiso
- Emma Campbell
- Sabnam Acharya Sigdel
- Zaeem Rizan
- Thao Tran
- Prabhu Teja Juvvireddy
Research fellows
- Dr Joosup Kim
- Dr Mulugeta Birhanu
- Professor Monique Kilkenny
- Dr Kathleen Bagot
Students
We accept data science interns and Health information Management students for placements throughout the year. Please contact us for more information.
Selected publications
- Kilkenny M F, Dalli L L, Andrew N E, Ung D, Kim J, Sundararajan V, Cadilhac D A, Thrift A G, Nelson M R, Olaiya M T, & PRECISE investigators (2025), ‘Region of birth differences in medication adherence among patients with stroke or transient ischemic attack’, Neuroepidemiology, 1–6, doi:10.1159/000543317
- Thayabaranathan T, Wallace S J, Kim J, Kilkenny M F, Olaiya M T, Andrew N E, Brogan E, Baker C, Godecke E, Copland D A, Rose M L, Birhanu M M, Cadilhac D A & Stroke123 Investigators (2024), ‘Impact of quality of care on outcomes in survivors of stroke with aphasia: A linked registry and hospital data observational study’, Journal of the Neurological Sciences, 466, 123251, doi:10.1016/j.jns.2024.123251
- Cadilhac D A, & Gibbs A K (2024), ‘Research Note: Registry-based randomised controlled trials with examples from the Australian Stroke Clinical Registry’, Journal of Physiotherapy, doi:10.1016/j.jphys.2024.02.015
- Cadilhac D A, Ross A G, Bagot K L, Blennerhassett J M, Kilkenny M F, Kim J, Purvis T, Barclay K M, Ellery F, Morrison J, Cranefield J, Kleinig T J, Grimley R, Jaques K, Wong D, Murphy L, Russell G, Nelson M R, Thijs V, … the A-LISTS investigator group (2024), ‘Protocol for a feasibility registry-based randomised controlled trial investigating a tailored follow-up service for stroke (A-LISTS)’, Pilot and Feasibility Studies, 10(1), 103, doi:10.1186/s40814-024-01527-y
- Ryan O, Ghuliani J, Grabsch B, Hill K, C Cloud G, Breen S, Kilkenny M F & Cadilhac D A (2024), ‘Development, implementation, and evaluation of the Australian Stroke Data Tool (AuSDaT): Comprehensive data capturing for multiple uses’, Health Information Management Journal, 53(2), 85–93, doi:10.1177/18333583221117184
- Purvis T, Cadilhac D A, Hill K, Gibbs A K, Ghuliani J, Middleton S & Kilkenny M F (2023), ‘Benefit of linking hospital resource information and patient-level stroke registry data’, International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care, 35(1), mzad003, doi:10.1093/intqhc/mzad003
- Cadilhac D A, Marion V, Andrew N E, Breen S J, Grabsch B, Purvis T, Morrison J L, Lannin N A, Grimley R S, Middleton S, & Kilkenny M F (2022), ‘A stepped-wedge cluster-randomized trial to improve adherence to evidence-based practices for acute stroke management’, Joint Commission Journal on Quality and Patient Safety, 48(12), 653–664, doi:10.1016/j.jcjq.2022.09.003
- Barclay K M, Kilkenny M F, Breen S J, Ryan O F, Bagot K L, Lannin N A, Thijs V, Cadilhac D A & AuSCR Consortium (2022), ‘Denial of cerebrovascular events in a national clinical quality registry for stroke: a retrospective cohort study’, Journal of Stroke and Cerebrovascular Diseases : the Official Journal of National Stroke Association, 31(2), 106210, doi:10.1016/j.jstrokecerebrovasdis.2021.106210
Contact us
For more information about our group’s research you can contact us by submitting this form.
